First of all, Milo did end up getting his tongue snipped. The Dr. was not certain it would make a difference because it wasn't sever, but he said it is so simple and painless that it may be worth doing in case it does help. And if it doesn't help, then we'll know for sure that was not the problem and we can move on. And sure enough... it was very simple and Milo doesn't seem to be in any discomfort or bothered at all by the procedure. We'll see if it helps.
So as soon as we walk in the door, I get a call from the hospital asking if I had any questions about my PET scan in the morning. So the lady on the phone mentions in passing that I won't be able to be around (in the same house) as any children for 12 hours after the scan. "Excuse me? I have an 11 week old!" "Oh did they not tell you that?" ... tears... "Um. NO!" So I immediately called Dr. Jones' office still crying. Long story short the PET scan has been cancelled. The nurse said they are not used to have young paitents and especially not young patients with young babies. So she is consulting with Dr. Jones to see how we should proceed. And they said its actually more like 12-24 hours that I should not be around children... as it can affect their development later in life. Seriously? I definitely don't want the PET scan now. I'm hoping Dr. Jones says we can just move on to the biopsy route. I'd rather they cut me open and still be able to be with my baby than fill with radioactive poison!! I'm definitely calling the hospital and informing them that no one thought to mention that tiny MAJOR detail.
Phew. What an afternoon it has been. And to think I have eaten 0 carbs all day for nothing... :) I'll post again when we find out what the next step will be.
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